Overview of content related to 'data set' http://www.ariadne.ac.uk/taxonomy/term/1535/all?article-type=&term=&organisation=&project=&author=martin%20donnelly&issue= RSS feed with Ariadne content related to specified tag en Repository Fringe 2010 http://www.ariadne.ac.uk/issue65/repos-fringe-2010-rpt <div class="field field-type-text field-field-teaser-article"> <div class="field-items"> <div class="field-item odd"> <p><a href="/issue65/repos-fringe-2010-rpt#author1">Martin Donnelly</a> (and friends) report on the Repository Fringe "unconference" held at the National e-Science Centre in Edinburgh, Scotland, over 2-3 September 2010.</p> </div> </div> </div> <p>2010 was the third year of Repository Fringe, and slightly more formally organised than its antecedents, with an increased number of discursive presentations and less in the way of organised chaos! The proceedings began on Wednesday 1 September with a one-day, pre-event SHERPA/RoMEO API Workshop [<a href="#1">1</a>] run by the Repositories Support Project team.</p> <p><a href="http://www.ariadne.ac.uk/issue65/repos-fringe-2010-rpt" target="_blank">read more</a></p> issue65 event report martin donnelly cetis dcc duraspace edina google jisc open university sherpa ukoln university of cambridge university of edinburgh university of glasgow university of hull university of southampton university of st andrews addressing history crispool datashare depositmo hydra jorum memento repomman reposit repositories support project romeo sharegeo sneep wikipedia aggregation api archives bibliographic data blog content management content negotiation csv curation data data management data set database digital curation digital library digital preservation digitisation dissemination doi dspace eprints fedora commons file format framework geospatial data gis google maps hashtag html hypertext identifier infrastructure institutional repository ipad kml learning objects mashup metadata national library oer ontologies open access open source preservation repositories research rss search technology social networks solr standards tagging twitter uri video visualisation wordpress yahoo pipes Fri, 29 Oct 2010 23:00:00 +0000 editor 1592 at http://www.ariadne.ac.uk The Fourth DCC-RIN Research Data Management Forum http://www.ariadne.ac.uk/issue63/rdmf4-rpt <div class="field field-type-text field-field-teaser-article"> <div class="field-items"> <div class="field-item odd"> <p><a href="/issue63/rdmf4-rpt#author1">Martin Donnelly</a> and <a href="/issue63/rdmf4-rpt#author2">Graham Pryor</a> report on the fourth Research Data Management Forum event, on the theme "Dealing with Sensitive Data: Managing Ethics, Security and Trust," organised by the Digital Curation Centre (DCC) and Research Information Network (RIN) in Manchester, England, over 10 - 11 March, 2010.</p> </div> </div> </div> <p>The fourth meeting of the Research Data Management Forum was held in Manchester on 10 and 11 March 2010, co-sponsored by the Digital Curation Centre (DCC) [<a href="#1">1</a>] and the Research Information Network (RIN) [<a href="#2">2</a>]. The event took <em>Dealing with Sensitive Data: Managing Ethics, Security and Trust</em> as its theme [<a href="#3">3</a>].</p> <h2 id="Day_1:_10_March_2010">Day 1: 10 March 2010</h2> <p>DCC Associate Director <strong>Liz Lyon</strong> and RIN Head of Programmes <strong>Stéphane Goldstein </strong>welcomed the 45 delegates to the event, and began by introducing the keynote speaker, <strong>Iain Buchan</strong>, Professor of Public Health Informatics and Director of the Northwest Institute for Bio-Health Informatics (NIBHI), University of Manchester.</p> <p>Iain's talk was entitled <em>Opening Bio-Health Data and Models Securely and Effectively for Public Benefit</em>, and addressed three main questions:</p> <ol> <li>Where does the public's health need digital innovation?</li> <li>How can research curators promote this innovation (and what are the implications for Ethics, Security and Trust)?</li> <li>Is a framework required (covering the Social Contract and a digital and operational infrastructure)?</li> </ol> <p>A major theme in contemporary healthcare is that of <em>prevention</em>, and the need for proactive 'citizen buy-in' in order to avert NHS bankruptcy, a need supported by the use of 'persuasive technologies.' There is, however, a disconnect between the proactive public health model, and the reactive clinical model, and between expectations and available resource. 'Digital bridges', composed of new information technologies, are used to close the gaps between primary and secondary care, and to link disease-specific pathways.</p> <p>Iain touched on the impact that the data deluge is having on healthcare, reflecting that knowledge can no longer be managed solely by reading scholarly papers: the datasets and structures now extend far beyond any single study's observations. It is now necessary to build data-centred models, and to interrogate them for clusters via dedicated algorithms.</p> <p>However, there are holes in the datasets – for example, clinical trials exclude women of childbearing age and subjects undergoing certain treatments – hence electronic health records must be mined in order to fill these gaps, but this can be problematised by a lack of useful metadata, leading to 'healthcare data tombs,' repositories of health records lacking the contextual information to make them useful. Such data resources may be worse than useless: they may be misinformation.</p> <p>Comprehensible social networks with user-friendly interfaces can be used to improve the quality of metadata, based on the principle that more frequent use leads to better quality information. These networks can also bridge the Balkanisation that can occur when different groups tackle the same issue from varying standpoints (e.g. examining obesity from dietary- and exercise-based perspectives, but not sharing data across these boundaries.) The vision is for a joint, open, unifying and interdisciplinary framework and understanding wherein resources and expertise are shared. Of course, crossing these divides is accompanied by a raft of trust and security issues, and Iain described the various measures that are implemented to cope with them.</p> <p>Iain discussed the ethical issues surrounding wider use of health record information across the NHS, including consent (opt-in versus opt-out), the right (or lack thereof) of an investigator to go to a patient directly, and – perhaps most controversially – whether it was actually <em>unethical </em>to allow a health dataset to go under-exploited. If this is indeed the case, it follows that there is a real need to audit the demonstrable good that is derived from datasets.</p> <p></p><p><a href="http://www.ariadne.ac.uk/issue63/rdmf4-rpt" target="_blank">read more</a></p> issue63 event report graham pryor martin donnelly bbc dcc jisc nhs research information network the national archives uk data archive university of bristol university of edinburgh university of london university of manchester algorithm archives curation data data management data set digital archive digital curation foi framework higher education infrastructure licence metadata preservation repositories research social networks standards ulcc Thu, 29 Apr 2010 23:00:00 +0000 editor 1551 at http://www.ariadne.ac.uk